NiSALS is the short version of Neuroimaging Society in Amyotrophic Lateral Sclerosis. The NiSALS process was started by Martin Turner in 2010 when he invited neuroimaging scientists from all over the world to Oxford. The meeting was very successful, and a series of symposia have since taken place in Europe and North America.
The NiSALS website has been set up to provide an interactive platform for research centers specializing in Amyotrophic Lateral Sclerosis neuroimaging research. Suffering from a deadly and rapidly progressing disease, ALS patients and their families provide MRI data to find a better diagnostic tool and a better disease marker. They expect researchers to gather more insights into the causes of a terrifying disease, and thus help to develop effective therapies in the future. Until today, it is very difficult to analyze MRI data from many different centers. NISALS aims to fill this gap and provide quality controlled MRI data for the international scientific community from countries all over the world. To that goal, NiSALS as of 2016 receives basic funding from charities and patient organizations (ie. the MNDA in the UK, the Dt. Gesellschaft für Muskelkranke DGM in Germany) and is striving to raise independent funding on a continuous basis. NiSALS collaborates with national (MND-ALS.NET in Germany, the MNDA in the UK, ALSA in the U.S.) and international networks of ALS researchers (i.e. World Federation of Neurology ALS/MND Group and the European Network for the Cure of ALS (ENCALS). The European Joint Programming for Neurodegenerative Diseases project SOPHIA has provided funding for basic instrumentation to standardize and harmonize data collection.
We invite You to explore the NiSALS process through this website, contact the involved people and learn about the progress of collaborative neuroimaging in ALS. Julian Grosskreutz, on behalf of the NiSALS steering comittee.
* The map presents an overview of the centers who have actively contributed to the NISALS process. (N) indicate sites which have hosted a NeuroImaging Symposium on ALS, or have taken on the task to organize one. New centers may not be represented yet. This page is updated manually, and irregularly and may not reflect the current status. Please contact the NISALS administrator for suggestions.